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Wednesday, March 29, 2017

An Exercise in Self-Stigma





Foreword: I subtitle this as a "Forensics Tourney Version" of a post previously uploaded. This version came about due to my new acquaintance with a High School girl in one of the classes I was teaching a year ago. She was/is a leading member of her school's Forensics Squad; one of the most remarkable students I have known. When she learned of my involvement with NAMI (National Alliance on Mental Health), she wanted to share with me the script of her National Tourney piece. It had to conform to a strict 7 minute time limit. A few weeks we had her present to our local NAMI Affiliate, and the response was outstanding. Then I was asked to present my story at the next meeting. I already had written "I CAN NEVER AGAIN CALL" about a year previously, but I decided that if my young protege could confine to 7 minutes, then so could I. This is the shortened version. The full version was perhaps twice as long.

 An Exercise in Self-Stigma

"Forensics Tourney Version" of 
I CAN NEVER AGAIN CALL


I was in my brother’s town, and I couldn’t call to say, “Hi, Ron! We’re here.” He had died 5 days earlier, and his funeral was the next morning. That was a final line of sorts on my own story of self-stigma, and serves as my jump-off point for a general discussion on stigma.
I am an Adult A.D.D. That’s not an illness; not even a “disorder” as “Attention Deficit Disorder” implies. Neither is it deficient attention. It’s more like I’m over attentive to all stimuli, and it’s genetic. We ADD people are hard-wired that way. Perhaps the “deficit” for us lies in how our “condition” is handled by others. Until recently, we were seen as flawed. Many people, including therapists, sometimes believe that we need to be “fixed.”
That cannot happen. For me, meds never worked, and early-on most professionals categorically denied that ADD could exist in adults; if it existed at all.
I started Kindergarten in 1949 when the “Humane Mental Health Movement” was barely underway, and I graduated High School in 1962. Back then few professionals knew of ADD and it wasn’t until the late ’60’s that teachers and principals knew much of it. What we now accept as ADD was boiled down to behavior; good kids, bad kids and those who wouldn’t apply themselves. They knew “mental retardation,” but I was a bright kid with a volatile temper, so I was in trouble a lot.
Before I proceed, I want to state clearly that I do not blame others for what happened as result of being ADD I don’t want anyone to feel badly because of what I am about to say. I simply want to acknowledge it and use it as a teaching point. The past is done, and mostly I am reconciled with it.
At school I fought a lot; such that a black eye on campus was mine, or I had given it. I was shunned and/or goaded into more fights. I felt unaccepted and on the outside of everything to the point that a few years ago a past classmate commented, “I’m afraid we didn’t treat you very nicely in school.”
With very notable exceptions I even stood alone with teachers.
Ultimately, even now as an adult I expect “the other shoe to drop” every time I leave home.
As a teenager, I protected myself by pulling so far away that at my 50-Year High School Reunion, one of my classmates commented, “Jack, I remember you as a quiet boy.”  Little did he know that despite being quite talkative I had no one to talk to.
I responded, “The only reason I kept quiet was that if I didn’t, someone would be there to knock me down.”
Even in my family of origin, I seldom felt secure. From childhood I remember little beyond conflict. If it wasn’t my dad getting into it with me or an older brother, it was two older brothers fighting. It matters little where the onus for that may have lain. That is just how I experienced life.
Despite the fact that as a toddler I was doted on by my older brothers and sisters, I just didn’t feel unconditionally loved, and I pulled away even from them. I decided that some of my family really didn’t like me; especially Ron.
I saw “signs that proved” my belief. Despite the fact that when we were little, Ron and I were nearly inseparable, in time I came to avoid him. If I was traveling on business, passing literally within two miles of his house, I made a point not to disturb him. It hurt badly at first, but since I reasoned that was the way he wanted things, I began to “reconcile” myself to what I thought was reality. I would pass by; in tears at first. Besides, he was a busy physician.
Well, wouldn’t you know it? Just when I think I’ve got it down pat, my machinations start to break down.
When our school in Oklahoma held a 100 year celebration a few years ago I avoided checking to see if Ron was going even though we would travel the same highway. I was reconciled to my old classmates, so I thought it didn’t matter if he were there not. When someone said they saw him, I struggled with my response. Should I maintain my status quo and not “bother him?”
To my surprise, before I could decide, he looked me up in the crowd and gave me a warm, loving hug; the warmest family hug I had known for many years.
My inner response? I didn’t know!”
From that time, I began to reconcile to Ron, and would make special effort to stop for lunch with him as I drove past. I hoped that without fanfare, in time I would be able to put things such as I’ve written here into the distant past.
Then, a couple of weeks before Ron died I had a phone visit with Glen, Ron’s best friend, whom we consider a part of our family. Glen told me of when he and Ron first met in the Eighth Grade.
“Jack, I don’t know if you know this, but when Ron and I became friends he knew you were treated badly at school. He made a point to say, ‘We’re going to be friends, but you need to know that Jack’s a part of the package, and that’s the way it will stay.’”
Glen said he had seen many times when someone treated me badly and Ron followed up later, confronting the offender and telling him to stop. Ron was a “big man on campus,” and most people listened to him.
Glenn finished, “You may not know it, Jack, but Ron always had your back.”
I never knew, and that’s “the rest of the story.”
I began planning a stop at Junction City on May 2, a planned visit to the State Capitol for the annual NAMIWalks, Kansas. I wanted to find a way to say, “Thank you for looking out for me even though I never understood.”
BUT, the cruel turn of fate was that my self-stigma became the final line of our relationship.
I can never again stop to have lunch with my brother. I can never again call him, visit him or write him.
I can never tell him, “Thanks, Ron.”